I had the privilege of talking with Bob several times. He was the first person I ever interacted with that also had Cronkhite Canada Syndrome. We both loved the conversations for there is nothing like sharing common stories and knowing someone other than you has had a similar experience.
He was treated at the Mayo Clinic – he was on prednisone for several years and whenever an attempt was made to get him off it – his symptoms came roaring back. I believe, but I may not be remembering correctly, that he was also on Imuran.
It was a sad day when I found out he had died.
Cronkhite Canada Syndrome 