I had the privilege of talking with Bob several times.  He was the first person I ever interacted with that also had Cronkhite Canada Syndrome.  We both loved the conversations for there is nothing like sharing common stories and knowing someone other than you has had a similar experience.

He was treated at the Mayo Clinic – he was on prednisone for several years and whenever an attempt was made to get him off it – his symptoms came roaring back.  I believe, but I may not be remembering correctly, that he was also on Imuran.

It was a sad day when I found out he had died.

http://www.dailyherald.com/article/20141006/news/141008869/